No worries. She definitely had a seizure. Complete grand mal, total body
convulsions, drooling, eyes toward the back of the head, back arched, etc.
Very clearly a seizure, all 3 times it happened. I wish that it were only
fainting... : (
--
Jamie
Earth Angels:
Taylor Marlys, 1/3/03
Addison Grace, 9/30/04
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<lhotard79@[EMAIL PROTECTED]
> wrote in message
news:1139875708.036776.145680@[EMAIL PROTECTED]
> Sorry, I didn't read all the comments about the family history of
> seizures, was just giving my personal experience.
>
> Lisa
> google@[EMAIL PROTECTED]
wrote:
>> Jamie-
>>
>> Sorry I am jumping into this late. I hope that Tayor is doing much
>> better by now. I will keep you all in in my thoughts.
>>
>> Joni
>>
>>
>> Jamie Clark wrote:
>> > All,
>> > Well, yesterday sucked. Taylor had a seizure around 7:30am. Luckily
>> > she
>> > was laying in my bed, in my arms when it happened. Addie was in her
>> > crib.
>> > Scared the crap out of me. It lasted about 10-15 seconds, then
>> > afterwards
>> > she was out of it and basically catatonic. I waited until the main
>> > part of
>> > the seizure was over, then ran downstairs to grab a phone to call
911.
>> > While talking to them, I raced back upstairs to make sure she was
>> > breathing
>> > (she was). By the time the paramedics arrived (2 ambulances and a
fire
>> > truck, 10 people total), she was in a deep sleep. They tried to wake
>> > her up
>> > and poked and prodded her, and she was really out of it -- didn't
seem
>> > to
>> > notice or mind that there were 10 strangers crowded around her,
taking
>> > her
>> > clothes off, putting nodes on her to monitor her heartbeat, etc,
which
>> > is
>> > really out of the ordinary.
>> >
>> > They took her to the local hospital ER while Addie and I followed
>> > behind. I
>> > called Rob who was at work and over an hour (ended up being almost 2
>> > hours
>> > away), and then called my dad & step mom (Dottie) who drove down (1.5
>> > hour
>> > drive). Meanwhile, I sat in the ER with Addie on one hip, cradling
>> > Taylor
>> > as best I could on the other side, and all of us crowded on to the
>> > hospital
>> > bed/gurney. It was really hard. Taylor finally started to come
>> > around,
>> > then was really upset and didn't want anyone to touch her. Of
course,
>> > they
>> > needed to poke and prod her, put in an IV, take rectal temps, look
into
>> > her
>> > ears, blood pressure cuff, listen to her heart, etc, and she was
>> > screaming
>> > and yelling the whole time.
>> >
>> > Then around 9am she had another seizure, and of course, there was no
>> > one
>> > around at all, and it seemed like no one came forever. Once they got
>> > there,
>> > they hooked her up to various machines, they gave her oxygen and some
>> > Ativan
>> > which put her out, they did a urine catheter, they did a CAT scan,
etc.
>> > My
>> > dad and Dottie finally arrived and took Addie, and Rob arrived a bit
>> > later.
>> >
>> > Around 12ish they were talking about moving her to a different
>> > hospital, as
>> > this one didn't really do pediatrics, so we were loading her up onto
>> > the
>> > gurney into her carseat, and she had another seizure. The paramedics
>> > stood
>> > there with their thumbs up their noses, so I whipped her out of her
>> > carseat
>> > and got her back onto the bed, and then finally a nurse came over to
>> > give
>> > her oxygen and another dose of Ativan, and again, she was knocked out
>> > for a
>> > long time. They then decided to transfer her over to Children's
>> > Hospital in
>> > Oakland, but it took until 3pm until we were in the ambulance and on
>> > the
>> > road. Once we got to Children's, she perked up a tiny bit, but was
>> > still
>> > incredibly weak, lethargic, and basically drugged. They gave her a
>> > dose of
>> > Depakote and told us we could take her home around 7pm. They gave us
a
>> > prescription for maintenance Depakote, and told us to follow up with
>> > our
>> > pediatrician, as well as contact the neurologist for an appointment.
>> > We
>> > were home by 8. My dad and step-mom spent the night, just in case
>> > anything
>> > else happened.
>> >
>> > She slept at the foot of our bed, and both dh and I expected to see
>> > much
>> > improvement today, but when she first woke up this morning she was
>> > still so
>> > weak and lethargic. She talks, but her words are slurred and she
still
>> > feels terrible and gets really upset and cries at almost anything.
She
>> > couldn't stand up by herself or walk. She threw up the first thing
she
>> > drank this morning as well. We called her pediatrician to have her
>> > seen and
>> > based on what we told them, they said we should take her back to
>> > Children's.
>> > My D&D had already left, so I called them back and asked him to take
>> > Addie
>> > for a day or 3, depending on how things went. By the time that they
>> > came
>> > back and we got all of Addie's stuff together, Taylor had actually
>> > crawled
>> > across the floor on her own to get more Gatorade, then a few minutes
>> > later,
>> > walked very slowly and crookedly to the office to tell Dada
something.
>> > So,
>> > we called the ped back and asked to go there first, and perhaps skip
>> > the
>> > hospital all together.
>> >
>> > The pediatrician was great. It wasn't our regular guy, but one of
his
>> > officemates. She was really good, and thorough, and checked a few
>> > other
>> > possibilities, including having us send a stool sample for Salmonella
>> > and
>> > something else, both of which can cause diarrhea and seizures. It's
>> > probably not that, but it feels good to have it checked. She also
told
>> > us
>> > that based on everything that Taylor has been through, plus all the
>> > drugs,
>> > she's doing just as she would expect. So, she's having us come back
on
>> > Friday to check her progress, as well as in a week to check the
levels
>> > of
>> > Depakote.
>> >
>> > We stopped at Burger King on the way home, because Taylor has been
>> > begging/
>> > obsessing about eating chicken nuggets, even in the moments after
>> > throwing
>> > up this morning. Since she'd gone on to eat some applesauce okay, as
>> > well
>> > as two chicken nuggets at home without problems, we figured it was
>> > okay.
>> > Wrong. She ate a few French fries on the way home in the car, and
then
>> > promptly threw up all over the floor in the family room. Although we
>> > just
>> > had it cleaned yesterday while we were at the hospital (already been
>> > scheduled, and since D&D were here with Addie, we figured we might as
>> > well
>> > go ahead with it), we had laid out a blanket to have a picnic, and
>> > luckily,
>> > she threw up on the blanket. (phew!). Anyway, we gave her the next
>> > dose of
>> > Depokote, and put her to bed. She slept for a couple of hours, and
is
>> > now
>> > up, begging for more chicken nuggets, which I'm giving her in small
>> > quantities. Which she just threw up again. Oy. Okay, no more
solids
>> > for
>> > her. Blech. It's hard, because she doesn't identify the solid food
>> > as the
>> > reason for throwing up, no matter what I tell her, and just keep
>> > begging for
>> > food. And since she is so sick and otherwise miserable, it's hard to
>> > not
>> > give her something to make her feel better, but I know it will only
>> > make her
>> > throw up and feel worse.
>> >
>> > Anyway, D&D are going to keep Addie overnight, and we'll see about
>> > getting
>> > her back tomorrow. My Mom & Step-dad (Steve, so M&S) were going to
>> > come up
>> > Friday for a prescheduled weekend visit, but are now going to fly up
>> > tomorrow afternoon instead, so that will be nice to have the extra
>> > help.
>> >
>> > Please keep us in your thoughts and prayers. It's been a really
scary
>> > time.
>> > --
>> >
>> > Jamie
>> > Earth Angels:
>> > Taylor Marlys, 1/3/03 -- Who's got the Christmas spirit, singing all
>> > day
>> > long, "You put one foot in front of the other, and soon you'll be
>> > walking
>> > out the doooo-oooo-ooor!
>> > Addison Grace, 9/30/04 -- My Little Ham, who smiles so big her eyes
>> > disappear and she says, "Cheese" on command. Although it sounds more
>> > like
>> > "eeeeeesssshhh"!
>> >
>> > Check out the family! -- www.MyFamily.com, User ID: Clarkguest1,
>> > Password:
>> > Guest
>> > Become a member for free - go to Add Member to set up your own User
ID
>> > and
>> > Password
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