Sorry, I didn't read all the comments about the family history of
seizures, was just giving my personal experience.
Lisa
google@[EMAIL PROTECTED]
wrote:
> Jamie-
>
> Sorry I am jumping into this late. I hope that Tayor is doing much
> better by now. I will keep you all in in my thoughts.
>
> Joni
>
>
> Jamie Clark wrote:
> > All,
> > Well, yesterday sucked. Taylor had a seizure around 7:30am. Luckily
she
> > was laying in my bed, in my arms when it happened. Addie was in her
crib.
> > Scared the crap out of me. It lasted about 10-15 seconds, then
afterwards
> > she was out of it and basically catatonic. I waited until the main
part of
> > the seizure was over, then ran downstairs to grab a phone to call 911.
> > While talking to them, I raced back upstairs to make sure she was
breathing
> > (she was). By the time the paramedics arrived (2 ambulances and a
fire
> > truck, 10 people total), she was in a deep sleep. They tried to wake
her up
> > and poked and prodded her, and she was really out of it -- didn't seem
to
> > notice or mind that there were 10 strangers crowded around her, taking
her
> > clothes off, putting nodes on her to monitor her heartbeat, etc, which
is
> > really out of the ordinary.
> >
> > They took her to the local hospital ER while Addie and I followed
behind. I
> > called Rob who was at work and over an hour (ended up being almost 2
hours
> > away), and then called my dad & step mom (Dottie) who drove down (1.5
hour
> > drive). Meanwhile, I sat in the ER with Addie on one hip, cradling
Taylor
> > as best I could on the other side, and all of us crowded on to the
hospital
> > bed/gurney. It was really hard. Taylor finally started to come
around,
> > then was really upset and didn't want anyone to touch her. Of course,
they
> > needed to poke and prod her, put in an IV, take rectal temps, look
into her
> > ears, blood pressure cuff, listen to her heart, etc, and she was
screaming
> > and yelling the whole time.
> >
> > Then around 9am she had another seizure, and of course, there was no
one
> > around at all, and it seemed like no one came forever. Once they got
there,
> > they hooked her up to various machines, they gave her oxygen and some
Ativan
> > which put her out, they did a urine catheter, they did a CAT scan,
etc. My
> > dad and Dottie finally arrived and took Addie, and Rob arrived a bit
later.
> >
> > Around 12ish they were talking about moving her to a different
hospital, as
> > this one didn't really do pediatrics, so we were loading her up onto
the
> > gurney into her carseat, and she had another seizure. The paramedics
stood
> > there with their thumbs up their noses, so I whipped her out of her
carseat
> > and got her back onto the bed, and then finally a nurse came over to
give
> > her oxygen and another dose of Ativan, and again, she was knocked out
for a
> > long time. They then decided to transfer her over to Children's
Hospital in
> > Oakland, but it took until 3pm until we were in the ambulance and on
the
> > road. Once we got to Children's, she perked up a tiny bit, but was
still
> > incredibly weak, lethargic, and basically drugged. They gave her a
dose of
> > Depakote and told us we could take her home around 7pm. They gave us
a
> > prescription for maintenance Depakote, and told us to follow up with
our
> > pediatrician, as well as contact the neurologist for an appointment.
We
> > were home by 8. My dad and step-mom spent the night, just in case
anything
> > else happened.
> >
> > She slept at the foot of our bed, and both dh and I expected to see
much
> > improvement today, but when she first woke up this morning she was
still so
> > weak and lethargic. She talks, but her words are slurred and she
still
> > feels terrible and gets really upset and cries at almost anything.
She
> > couldn't stand up by herself or walk. She threw up the first thing
she
> > drank this morning as well. We called her pediatrician to have her
seen and
> > based on what we told them, they said we should take her back to
Children's.
> > My D&D had already left, so I called them back and asked him to take
Addie
> > for a day or 3, depending on how things went. By the time that they
came
> > back and we got all of Addie's stuff together, Taylor had actually
crawled
> > across the floor on her own to get more Gatorade, then a few minutes
later,
> > walked very slowly and crookedly to the office to tell Dada something.
So,
> > we called the ped back and asked to go there first, and perhaps skip
the
> > hospital all together.
> >
> > The pediatrician was great. It wasn't our regular guy, but one of his
> > officemates. She was really good, and thorough, and checked a few
other
> > possibilities, including having us send a stool sample for Salmonella
and
> > something else, both of which can cause diarrhea and seizures. It's
> > probably not that, but it feels good to have it checked. She also
told us
> > that based on everything that Taylor has been through, plus all the
drugs,
> > she's doing just as she would expect. So, she's having us come back
on
> > Friday to check her progress, as well as in a week to check the levels
of
> > Depakote.
> >
> > We stopped at Burger King on the way home, because Taylor has been
begging/
> > obsessing about eating chicken nuggets, even in the moments after
throwing
> > up this morning. Since she'd gone on to eat some applesauce okay, as
well
> > as two chicken nuggets at home without problems, we figured it was
okay.
> > Wrong. She ate a few French fries on the way home in the car, and
then
> > promptly threw up all over the floor in the family room. Although we
just
> > had it cleaned yesterday while we were at the hospital (already been
> > scheduled, and since D&D were here with Addie, we figured we might as
well
> > go ahead with it), we had laid out a blanket to have a picnic, and
luckily,
> > she threw up on the blanket. (phew!). Anyway, we gave her the next
dose of
> > Depokote, and put her to bed. She slept for a couple of hours, and is
now
> > up, begging for more chicken nuggets, which I'm giving her in small
> > quantities. Which she just threw up again. Oy. Okay, no more solids
for
> > her. Blech. It's hard, because she doesn't identify the solid food
as the
> > reason for throwing up, no matter what I tell her, and just keep
begging for
> > food. And since she is so sick and otherwise miserable, it's hard to
not
> > give her something to make her feel better, but I know it will only
make her
> > throw up and feel worse.
> >
> > Anyway, D&D are going to keep Addie overnight, and we'll see about
getting
> > her back tomorrow. My Mom & Step-dad (Steve, so M&S) were going to
come up
> > Friday for a prescheduled weekend visit, but are now going to fly up
> > tomorrow afternoon instead, so that will be nice to have the extra
help.
> >
> > Please keep us in your thoughts and prayers. It's been a really scary
time.
> > --
> >
> > Jamie
> > Earth Angels:
> > Taylor Marlys, 1/3/03 -- Who's got the Christmas spirit, singing all
day
> > long, "You put one foot in front of the other, and soon you'll be
walking
> > out the doooo-oooo-ooor!
> > Addison Grace, 9/30/04 -- My Little Ham, who smiles so big her eyes
> > disappear and she says, "Cheese" on command. Although it sounds more
like
> > "eeeeeesssshhh"!
> >
> > Check out the family! -- www.MyFamily.com, User ID: Clarkguest1,
Password:
> > Guest
> > Become a member for free - go to Add Member to set up your own User ID
and
> > Password
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