Jamie-
Sorry I am jumping into this late. I hope that Tayor is doing much
better by now. I will keep you all in in my thoughts.
Joni
Jamie Clark wrote:
> All,
> Well, yesterday sucked. Taylor had a seizure around 7:30am. Luckily
she
> was laying in my bed, in my arms when it happened. Addie was in her
crib.
> Scared the crap out of me. It lasted about 10-15 seconds, then
afterwards
> she was out of it and basically catatonic. I waited until the main part
of
> the seizure was over, then ran downstairs to grab a phone to call 911.
> While talking to them, I raced back upstairs to make sure she was
breathing
> (she was). By the time the paramedics arrived (2 ambulances and a fire
> truck, 10 people total), she was in a deep sleep. They tried to wake
her up
> and poked and prodded her, and she was really out of it -- didn't seem
to
> notice or mind that there were 10 strangers crowded around her, taking
her
> clothes off, putting nodes on her to monitor her heartbeat, etc, which
is
> really out of the ordinary.
>
> They took her to the local hospital ER while Addie and I followed
behind. I
> called Rob who was at work and over an hour (ended up being almost 2
hours
> away), and then called my dad & step mom (Dottie) who drove down (1.5
hour
> drive). Meanwhile, I sat in the ER with Addie on one hip, cradling
Taylor
> as best I could on the other side, and all of us crowded on to the
hospital
> bed/gurney. It was really hard. Taylor finally started to come around,
> then was really upset and didn't want anyone to touch her. Of course,
they
> needed to poke and prod her, put in an IV, take rectal temps, look into
her
> ears, blood pressure cuff, listen to her heart, etc, and she was
screaming
> and yelling the whole time.
>
> Then around 9am she had another seizure, and of course, there was no one
> around at all, and it seemed like no one came forever. Once they got
there,
> they hooked her up to various machines, they gave her oxygen and some
Ativan
> which put her out, they did a urine catheter, they did a CAT scan, etc.
My
> dad and Dottie finally arrived and took Addie, and Rob arrived a bit
later.
>
> Around 12ish they were talking about moving her to a different hospital,
as
> this one didn't really do pediatrics, so we were loading her up onto the
> gurney into her carseat, and she had another seizure. The paramedics
stood
> there with their thumbs up their noses, so I whipped her out of her
carseat
> and got her back onto the bed, and then finally a nurse came over to
give
> her oxygen and another dose of Ativan, and again, she was knocked out
for a
> long time. They then decided to transfer her over to Children's
Hospital in
> Oakland, but it took until 3pm until we were in the ambulance and on the
> road. Once we got to Children's, she perked up a tiny bit, but was
still
> incredibly weak, lethargic, and basically drugged. They gave her a dose
of
> Depakote and told us we could take her home around 7pm. They gave us a
> prescription for maintenance Depakote, and told us to follow up with our
> pediatrician, as well as contact the neurologist for an appointment. We
> were home by 8. My dad and step-mom spent the night, just in case
anything
> else happened.
>
> She slept at the foot of our bed, and both dh and I expected to see much
> improvement today, but when she first woke up this morning she was still
so
> weak and lethargic. She talks, but her words are slurred and she still
> feels terrible and gets really upset and cries at almost anything. She
> couldn't stand up by herself or walk. She threw up the first thing she
> drank this morning as well. We called her pediatrician to have her seen
and
> based on what we told them, they said we should take her back to
Children's.
> My D&D had already left, so I called them back and asked him to take
Addie
> for a day or 3, depending on how things went. By the time that they
came
> back and we got all of Addie's stuff together, Taylor had actually
crawled
> across the floor on her own to get more Gatorade, then a few minutes
later,
> walked very slowly and crookedly to the office to tell Dada something.
So,
> we called the ped back and asked to go there first, and perhaps skip the
> hospital all together.
>
> The pediatrician was great. It wasn't our regular guy, but one of his
> officemates. She was really good, and thorough, and checked a few other
> possibilities, including having us send a stool sample for Salmonella
and
> something else, both of which can cause diarrhea and seizures. It's
> probably not that, but it feels good to have it checked. She also told
us
> that based on everything that Taylor has been through, plus all the
drugs,
> she's doing just as she would expect. So, she's having us come back on
> Friday to check her progress, as well as in a week to check the levels
of
> Depakote.
>
> We stopped at Burger King on the way home, because Taylor has been
begging/
> obsessing about eating chicken nuggets, even in the moments after
throwing
> up this morning. Since she'd gone on to eat some applesauce okay, as
well
> as two chicken nuggets at home without problems, we figured it was okay.
> Wrong. She ate a few French fries on the way home in the car, and then
> promptly threw up all over the floor in the family room. Although we
just
> had it cleaned yesterday while we were at the hospital (already been
> scheduled, and since D&D were here with Addie, we figured we might as
well
> go ahead with it), we had laid out a blanket to have a picnic, and
luckily,
> she threw up on the blanket. (phew!). Anyway, we gave her the next
dose of
> Depokote, and put her to bed. She slept for a couple of hours, and is
now
> up, begging for more chicken nuggets, which I'm giving her in small
> quantities. Which she just threw up again. Oy. Okay, no more solids
for
> her. Blech. It's hard, because she doesn't identify the solid food as
the
> reason for throwing up, no matter what I tell her, and just keep begging
for
> food. And since she is so sick and otherwise miserable, it's hard to
not
> give her something to make her feel better, but I know it will only make
her
> throw up and feel worse.
>
> Anyway, D&D are going to keep Addie overnight, and we'll see about
getting
> her back tomorrow. My Mom & Step-dad (Steve, so M&S) were going to
come up
> Friday for a prescheduled weekend visit, but are now going to fly up
> tomorrow afternoon instead, so that will be nice to have the extra help.
>
> Please keep us in your thoughts and prayers. It's been a really scary
time.
> --
>
> Jamie
> Earth Angels:
> Taylor Marlys, 1/3/03 -- Who's got the Christmas spirit, singing all day
> long, "You put one foot in front of the other, and soon you'll be
walking
> out the doooo-oooo-ooor!
> Addison Grace, 9/30/04 -- My Little Ham, who smiles so big her eyes
> disappear and she says, "Cheese" on command. Although it sounds more
like
> "eeeeeesssshhh"!
>
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