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--
Jamie
Earth Angels:
Taylor Marlys, 1/3/03 -- Who's got the Christmas spirit, singing all day
long, "You put one foot in front of the other, and soon you'll be walking
out the doooo-oooo-ooor!
Addison Grace, 9/30/04 -- My Little Ham, who smiles so big her eyes
disappear and she says, "Cheese" on command. Although it sounds more like
"eeeeeesssshhh"!
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"Holly Sox" <jmsjr@[EMAIL PROTECTED]
> wrote in message
news:dse4s5$dkvl$1@[EMAIL PROTECTED]
> Jamie,
>
> I am so sorry y'all are going through this. Cody has been dealing with
> seizures since age 7. It is a horrifying thing to see and not be able
to
> do
> anything about. One of the reasons I have not been posting a lot on any
> of
> the boards is that things have been really in high gear with him lately.
>
> Anyway, be aware that the Depakote can have some pretty big side
effects.
> Cody was eventually unable to tie his shoes due to tremors.
>
> If you have any questions about the seizures, meds, treatments, etc,
> please
> email me!
>
> Holly
>
>
>
> --
> Holly F. Sox, RN, RAC-C
> Clinical Services Manager
> Robin Technologies
>
> holly@[EMAIL PROTECTED]
www.careplans.com
> "Jamie Clark" <jamielee6@[EMAIL PROTECTED]
> wrote in message
> news:EMOdnfjQ0ekv43feRVn-gQ@[EMAIL PROTECTED]
>> All,
>> Well, yesterday sucked. Taylor had a seizure around 7:30am. Luckily
she
>> was laying in my bed, in my arms when it happened. Addie was in her
>> crib.
>> Scared the crap out of me. It lasted about 10-15 seconds, then
>> afterwards
>> she was out of it and basically catatonic. I waited until the main
part
> of
>> the seizure was over, then ran downstairs to grab a phone to call 911.
>> While talking to them, I raced back upstairs to make sure she was
> breathing
>> (she was). By the time the paramedics arrived (2 ambulances and a fire
>> truck, 10 people total), she was in a deep sleep. They tried to wake
her
> up
>> and poked and prodded her, and she was really out of it -- didn't seem
to
>> notice or mind that there were 10 strangers crowded around her, taking
>> her
>> clothes off, putting nodes on her to monitor her heartbeat, etc, which
is
>> really out of the ordinary.
>>
>> They took her to the local hospital ER while Addie and I followed
behind.
> I
>> called Rob who was at work and over an hour (ended up being almost 2
>> hours
>> away), and then called my dad & step mom (Dottie) who drove down (1.5
>> hour
>> drive). Meanwhile, I sat in the ER with Addie on one hip, cradling
>> Taylor
>> as best I could on the other side, and all of us crowded on to the
> hospital
>> bed/gurney. It was really hard. Taylor finally started to come
around,
>> then was really upset and didn't want anyone to touch her. Of course,
> they
>> needed to poke and prod her, put in an IV, take rectal temps, look into
> her
>> ears, blood pressure cuff, listen to her heart, etc, and she was
>> screaming
>> and yelling the whole time.
>>
>> Then around 9am she had another seizure, and of course, there was no
one
>> around at all, and it seemed like no one came forever. Once they got
> there,
>> they hooked her up to various machines, they gave her oxygen and some
> Ativan
>> which put her out, they did a urine catheter, they did a CAT scan, etc.
> My
>> dad and Dottie finally arrived and took Addie, and Rob arrived a bit
> later.
>>
>> Around 12ish they were talking about moving her to a different
hospital,
> as
>> this one didn't really do pediatrics, so we were loading her up onto
the
>> gurney into her carseat, and she had another seizure. The paramedics
> stood
>> there with their thumbs up their noses, so I whipped her out of her
> carseat
>> and got her back onto the bed, and then finally a nurse came over to
give
>> her oxygen and another dose of Ativan, and again, she was knocked out
for
> a
>> long time. They then decided to transfer her over to Children's
Hospital
> in
>> Oakland, but it took until 3pm until we were in the ambulance and on
the
>> road. Once we got to Children's, she perked up a tiny bit, but was
still
>> incredibly weak, lethargic, and basically drugged. They gave her a
dose
> of
>> Depakote and told us we could take her home around 7pm. They gave us a
>> prescription for maintenance Depakote, and told us to follow up with
our
>> pediatrician, as well as contact the neurologist for an appointment.
We
>> were home by 8. My dad and step-mom spent the night, just in case
> anything
>> else happened.
>>
>> She slept at the foot of our bed, and both dh and I expected to see
much
>> improvement today, but when she first woke up this morning she was
still
> so
>> weak and lethargic. She talks, but her words are slurred and she still
>> feels terrible and gets really upset and cries at almost anything. She
>> couldn't stand up by herself or walk. She threw up the first thing she
>> drank this morning as well. We called her pediatrician to have her
seen
> and
>> based on what we told them, they said we should take her back to
> Children's.
>> My D&D had already left, so I called them back and asked him to take
>> Addie
>> for a day or 3, depending on how things went. By the time that they
came
>> back and we got all of Addie's stuff together, Taylor had actually
>> crawled
>> across the floor on her own to get more Gatorade, then a few minutes
> later,
>> walked very slowly and crookedly to the office to tell Dada something.
> So,
>> we called the ped back and asked to go there first, and perhaps skip
the
>> hospital all together.
>>
>> The pediatrician was great. It wasn't our regular guy, but one of his
>> officemates. She was really good, and thorough, and checked a few
other
>> possibilities, including having us send a stool sample for Salmonella
and
>> something else, both of which can cause diarrhea and seizures. It's
>> probably not that, but it feels good to have it checked. She also told
>> us
>> that based on everything that Taylor has been through, plus all the
>> drugs,
>> she's doing just as she would expect. So, she's having us come back on
>> Friday to check her progress, as well as in a week to check the levels
of
>> Depakote.
>>
>> We stopped at Burger King on the way home, because Taylor has been
> begging/
>> obsessing about eating chicken nuggets, even in the moments after
>> throwing
>> up this morning. Since she'd gone on to eat some applesauce okay, as
>> well
>> as two chicken nuggets at home without problems, we figured it was
okay.
>> Wrong. She ate a few French fries on the way home in the car, and then
>> promptly threw up all over the floor in the family room. Although we
>> just
>> had it cleaned yesterday while we were at the hospital (already been
>> scheduled, and since D&D were here with Addie, we figured we might as
>> well
>> go ahead with it), we had laid out a blanket to have a picnic, and
> luckily,
>> she threw up on the blanket. (phew!). Anyway, we gave her the next
dose
> of
>> Depokote, and put her to bed. She slept for a couple of hours, and is
>> now
>> up, begging for more chicken nuggets, which I'm giving her in small
>> quantities. Which she just threw up again. Oy. Okay, no more solids
>> for
>> her. Blech. It's hard, because she doesn't identify the solid food
as
> the
>> reason for throwing up, no matter what I tell her, and just keep
begging
> for
>> food. And since she is so sick and otherwise miserable, it's hard to
not
>> give her something to make her feel better, but I know it will only
make
> her
>> throw up and feel worse.
>>
>> Anyway, D&D are going to keep Addie overnight, and we'll see about
>> getting
>> her back tomorrow. My Mom & Step-dad (Steve, so M&S) were going to
come
> up
>> Friday for a prescheduled weekend visit, but are now going to fly up
>> tomorrow afternoon instead, so that will be nice to have the extra
help.
>>
>> Please keep us in your thoughts and prayers. It's been a really scary
> time.
>> --
>>
>> Jamie
>> Earth Angels:
>> Taylor Marlys, 1/3/03 -- Who's got the Christmas spirit, singing all
day
>> long, "You put one foot in front of the other, and soon you'll be
walking
>> out the doooo-oooo-ooor!
>> Addison Grace, 9/30/04 -- My Little Ham, who smiles so big her eyes
>> disappear and she says, "Cheese" on command. Although it sounds more
>> like
>> "eeeeeesssshhh"!
>>
>> Check out the family! -- www.MyFamily.com, User ID: Clarkguest1,
> Password:
>> Guest
>> Become a member for free - go to Add Member to set up your own User ID
>> and
>> Password
>>
>>
>
>
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