12/6/96 Frequently Asked Questions About
--------------------------------
ALT.HEALTH.CFS
Chronic Fatigue Syndrome
Table of Contents
--------------------------------
I. Reason for the Creation and Purpose of
ALT.HEALTH.CFS
II. Direction we hope ALT.HEALTH.CFS Takes
III. Related or Interesting Web Sites
IV. Access alt.health.cfs
We have endeavored to keep this short and to the point so
PWCs can read and understand the information without
taxing themselves and/or others. Thanks for coming to
alt.health.cfs!! We hope to see you here frequently!!!
Remember: This group is UNMODERATED
***********************************************************
I. The reason for creation and purpose of alt.health.cfs:
Many in the CFS/CFIDS community have expressed a need for a TRULY and
completely unmoderated newsgroup. There are newsgroups and list servers =
=
that
claim to be un- or loosely moderated however, there is still an owner an=
d
there is still some level of moderation. (this varies by degree) =
alt.health.cfs
is GENUINELY unmoderated, at ALL Times.
Having a completely unmoderated newsgroup means that no one, even the
creator of the group,(John Azzara) can dictate policy or take any action=
against any one's postings and opinions. This forum is a true forum of f=
ree
speech and open exchange of ideas and theories relating to CFIDS and CFI=
DS
issues. You no longer have to be in fear of criticism for things such as=
etiquette, grammar, spelling errors, or just voicing your opinion. No =
matter
how outrageous or politically incorrect your personal feelings may be. =
Debating
is fine. However, we would encourage everyone to try to act in a civil
and adult manner and try to treat others as you would like to be treated=
..
A very simple concept and one we believe can work.
There is a small price one has to pay for this freedom of speech. That i=
s =
we
are left open to what one would consider obscene postings, advertising's=
=
and
wrongful public ridicule (flaming). But in our opinion this is a very sm=
all
price to pay for freedom. It is very simple to deal with these posts, no=
=
matter
how inflammatory. We encourage that when you see these types of posts
to merely skip by them, delete them and/or don't even bother viewing the=
m.
************************************************************************=
********
II. The direction we hope this newsgroup takes:
That this forum takes on a direction to be more informative about CFS/CF=
IDS
and related diseases and conditions. There are already several newsgroup=
s =
and
list servers that are more geared to sharing one's day to day joys and o=
r
suffering with this disease. This group is intended to be more medically=
/
informational oriented. Posts about research and medical news would be
strongly encouraged. We encourage everyone to post as often and as long =
as =
they
would like. Again no one can stop you for the length or controversial =
content
of your post. It is up to each reader to decide what they wish to read o=
r
skip.
Being a completely unmoderated group you may encounter times when you wi=
ll
find your posting to alt.health.cfs show up in other groups and list
servers without your written permission. Please bear this in mind. You m=
ay
want to add a disclaimer at the top and bottom of your posts asking that=
=
the
poster get your permission before reposting. While reposting without cre=
dit
or permission is technically illegal, so much of it goes on, and posters=
=
often
deletes your name or the name of the writer. It's impossible to put a
stop to this. Bear this in mind when posting. We would also like to =
encourage
everyone to do a little educational work on finding out how newsgroups w=
ork
and propagate. Some people on alt.health.cfs are highly informed. You ma=
y =
want
to review older posts to get information. Feel free to ask older newsgro=
up
members for web sites, or books about CFIDS to learn all you can about
the subject.
Since this group was created 12/6/96 it will take some time for your loc=
al
provider to subscribe to it. The best way you can have access to our
newsgroup is to ask your provider to add it to his groups list. A most
effective way of reading the newsgroup is to utilize newsgroup search
engines. Such as www.dejanews.com or www.reference.com, both these are v=
ery
effective in reading and posting messages. As time goes on the group wil=
l
propagate better and be easier to access. Speak to your provider to =
encourage
them to add this newsgroup to your list.
The creator of alt.health.cfs is John Azzara and he can be reached at
jazzara@[EMAIL PROTECTED]
has had CFIDS for approximately 4 years and has been active on the
net for 3 years. If you have any suggestions to make alt.health.cfs bet=
ter
please write!! Remember, Mr. Azzara in NO WAY can make moderation
changes or enforce any rules. This is your newsgroup!
Currently, alt.health.cfs is available only as a newsgroup. There is no=
current listserv access. We look forward to speaking with you on line as=
we all travel our path to wellness!! Caregivers, doctors, researchers a=
nd
concerned friends of PWCs are more than welcome on alt.health.cfs
************************************************************************=
********
Subject: Beware of false prophets!
Please beware of anyone trying to preach the magic cure for cfs.
At this time there is no one treatment, or what you would consider a cur=
e
for this disease. What treatment may have been beneficial to one, will n=
ot
necessarily be beneficial to all. Unfortunately there is no definitive c=
ure
at this time. In addition to this, many treatments that are being sugges=
ted
at this time may actually worsen or aggravate your symptoms, and cause
more harm than good. Especially treatments that may worsen other disease=
s
such as hypertension.
One of the downside of being a completely unmoderated newsgroup is being=
subject to all kinds of suggested irresponsible medical advise and
treatments and, possible advertisements for a cure. This is a very small=
price one has to pay for freedom of speech. Please consult your medical=
physician before embarking on anyone's supposed cure. ( s**** oil).
Thank you very much for reading this and be well.
This newsgroup is available only via Usenet or a search engine such as
http://www.dejanews.com.
It is not available via email by subscription a=
t
this time.
IV. RELATED OR INTERESTING WEBSITES
The Neurological Aspects of CFIDS
http://prairie.lakes.com/~roseleaf/fibro/cfs-1.html
Wilson's Syndrome
http://www.mall-net.com/mcs/wilsons.html
CFIDS - Sleep Disorder
http://www.healthy.net/library/articles/chaitow/fibromy/fibro3.htm
CFSUM-1 (CFIDS Urine Marker)
http://www.newcastle.edu.au/department/bi/birjt/cpruis
MCS/Multiple Chemical Sensitivity
http://www.mall-net.com/mcs/
MEDLINE Searches
http://www.healthgate.com
New Jersey CFIDS Association
http://village.ios.com/~njcfsa/join.html
http://www.wdn.com/mirkin/7120.html
FMS and CFS sensitivity site
http://www.wdn.com/mirkin/7120.html
Managment of CFS in CFIDS
http://www2.rpa.net/~lrandall/index.html
John Azzara, Creator of alt.health.cfs Web Page
http://www.geocities.com/HotSprings/Spa/5047/
Enjoy alt.health.cfs and tell your friends!! We look forward
to seeing you on line!!
------------------------------------------------------------------------=
--------
IV. There are other ways to access alt.health.cfs some are listed below=
..
A. http://groups.google.com
B. =
|
